Fibromyalgia. My thorn has a name. I don’t really feel as if I have more power over the thing. This is my official diagnosis.
It’s not the type of condition for which there is a definitive test. It’s the last option after everything else is ruled out. The good news is that I finally saw the rheumatologist, after 3.5 months of messing with insurance. The bad news is the future is a mess of therapies (drug, physical, and mental) stretching out endlessly before me. The strategy: keep trying until something works.
April 4th, 2012 at 1:08 pm
As much as the diagnosis sucks, I’m glad that you finally have some sort of answer and can start some form of treatment. Hopefully, with plenty of prayer and some good doctors, we can have you feeling the best you’ve felt in a long time! :)
April 8th, 2012 at 9:46 am
I agree, it does provide some closure to have a diagnosis, and I’m thankful for it. Thank you, please pray that there will be minimal side effects from the drugs, and we’ll find one/ a combo that works well.
April 4th, 2012 at 3:18 pm
We know now and we continue to pray for you.
I’m sure you have all kinds of info but here is the official stuff from NIH NLM => http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001463/
Let me know if you want me to look up some info on PubMed for you! Put the science librarian to research work, she loves it! ;D
April 8th, 2012 at 9:51 am
Jeffra,
Your science librarian approach makes me smile, truly you are a kindred spirit. That’s a great idea, I’m not sure how much can be done since fibro is so amorphous, but I may contact you about research related to some of the drugs. Thanks!
April 5th, 2012 at 11:48 am
Welcome to the club. It sucks but it’s ours. Luckily there are a lot of us out here that are going through this same hell and can be here for you to talk to. I’ve found a slew of loving people right here.
My first advice is to be gentle with yourself and surround yourself with softness. Don’t be afraid to ask for help.
April 8th, 2012 at 9:53 am
Thank you for the understanding and advice. I appreciate it. My eyes being opened to a world of people who go through so much, and for whom so much has yet to be done in the way of a solution. Take care.
April 7th, 2012 at 1:30 am
I am so sorry my friend, welcome to the family :(
April 8th, 2012 at 9:54 am
Thank you, dear one.
April 7th, 2012 at 6:15 pm
Thanks for the update, Kate. We’ll be praying more specifically now for your pain management and successful treatment of the fibromyalgia. As horrible as all this is, I am glad you now have a diagnosis and a plan going forward. Sending love, hugs and prayers!
April 8th, 2012 at 9:55 am
Liz,
Thank you for your prayers, please pray specifically that the side effects of the drugs will be minimal.
April 7th, 2012 at 7:05 pm
2 Thessalonians 2:17 Lord, please give her encouragement, reassuring her that her example and witness in even the odd places like fitocracy to even the odd people like me, serves your purpose. You are faithful and reward those who call upon your name, in good times and in bad. Amen.
April 8th, 2012 at 10:05 am
Michael,
Thank you for the encouragement, brother. His faithfulness is indeed without end!
April 7th, 2012 at 7:10 pm
Ack. = bitflipper on fitocracy. Sorry about that.
June 19th, 2012 at 5:20 am
Thanks for sharing your story. Very inspirational. Just do not treat your diagnosis as a death sentance. You can treat this!
June 19th, 2012 at 10:44 pm
Thanks for the encouragement. =)